July 18,2015: I am happy to report zero pain!!!! It's a total miracle. I have had some very mild nausea & vomiting but not to worry I believe it's the tail end of the C. diff. I'm about halfway thru my oral antibiotics to treat the C. diff & then hopefully no more antibiotics of ANY kind in my near future.
I finished my last dose of IV nausea meds last night. Thanks again to my amazing home infusion nurses. For the last 5 weeks they have worked tirelessly to advocate on my behalf. They inherently knew I was too tired to keep up the 'fight' amid efforts to coordinate this aspect of my care. If you are reading this, you ladies are the most sincere and dedicated nurses ever! To all of my supporters out there, these ladies never ever gave up on me. They treated me with kindness and dignity and despite some of THE crappiest veins (mine) on the planet, they never made me feel like an imposition. Instead telling me how great and patient I was. Thanks for all of the long hours, ladies. Love to you & your families.
All I want is to feel good enough to go to Lu's softball tourney this weekend. I've tried relentlessly to will my body out of this awful drug withdrawal. I'm afraid it's only just begun. I.m beginning to feel restless and edgy. I'm distracted by nothing and am having difficulty mustering up the concentration and stillness required to do my lung treatments. I really want to go to the lake with Hattie and some girlfriends next; but, if I continue to feel this way I may not have enough energy. When you are going thru drug withdrawal it is difficult to have even the simplest of conversations with people. So, I'm avoiding it. Unhealthy, I know. Please, God, make this as quick as possible.
I can now eat 2-3 small meals a day. I am happy to say that I can also now drink several glasses of water a day without vomiting or feeling like i have a lead weight in my gut. I think this gastric pacer is working. OMG, I'm so excited I want to yell and scream and tell everyone. I need to be patient, however, as I'm now wise to the cruelty and unpredictability of CF pancreatitis and gastroparesis. I'm smiling a huge smile to myself, I hope this lasts. I have a feeling it's going to!!! I cannot remember the last time I was pain-free for this long. I wasn't pain-free this long while taking heavy duty pain medication. Thank you, everyone, for your kindness, prayers, and generosity. I feel like the dark cloud is being lifted!!!