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Kristen's CF journey 


DISCOURAGED BUT LOOKING UP

9/30/2015

2 Comments

 

My GI symptoms are not getting worse but they are definitely not getting better. I still have my central line in and am going in to home health several times a week to get fluids and nausea meds. These interventions seem to help for several hours up to a couple of days. I am going to continue with this plan until I begin to see an improvement in my symptoms. I am a little bummed but realize this is still far better than where I was at 3 months ago. I just wonder when or if I will ever be able to work again...or have a predictable day-to-day schedule ya know. It's not that I want to get up everyday at exactly 7:15, eat 2.3 ounces of oatmeal, drop Hattie off at school, pick her up at 4:00, workout from, well, and so on and so on. Hardly. But, good God, I would love to proclaim, with certainty, that I do not expect to go to the hospital again for another 2 months. Hey, I'll take a month-long break at this point.

I want to say thanks to all of our loved ones and Warrior supporters. I appreciate people's understanding of my ever-changing and unpredictable schedule. I continue to be awe-struck that you guys just roll with it and make new plans with me for, sometimes, the umpteenth time. Thank God you love me unconditionally is all that I can say! LOL.

Please take a minute to look at our photos. It's been awesome to be home so much more over the last several months. We have taken advantage of friends, family, good weather and especially summertime! Hattie's first day of pre-school was yesterday, awwwwweeee, what a cheeser! We love her!

Love, Kristen

Picture
First day of preschool! Daddy n Hattie.
Picture
Lovin the backpack!
Picture
Pumpkin Patch.
Picture
Pony riding at the pumpkin patch. 2 year old Hattie does not like riding ponies! LOL.
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