So.....we've been in Denver for a week now. Things are going well. We had a few hiccups at the start, mostly related to being admitted to the hospital over a holiday, go figure. Unfortunately, that means Kristen had to endure more than she needed to. Other than that things are moving forward nicely. My mom drove out with us and just left yesterday back to Portland. It was so great to have her here with us. Hattie loves her Nana, so much so that she even shared her cold with her. Mom came to help with Hattie and get us situated here in Denver. She left here sick and not feeling her best. Sorry mom that my family literally made you sick. We really can't thank you enough for making the trip. The first week in the hospital is always tough, doubly so being at a new facility. Your being here made it so much smoother, thanks again.
On an side note. I am so lucky to get hooked up with the people at the Rosy Bowl here in Denver. From our home base here in Denver, the hospital is a mile away, the skate bowl is just a few miles away. We are close to parks to take Hattie too. With everything that's been going on, finding an amazing place for me to go skate, close to the house and inside no less is so great. Best wooden skate bowl I've ever had the chance to skate. Skating has always been, my time, my release and I am so thankful for having an outlet here. Thanks Brandon for hooking me up with Jon. Private indoor skate bowl, Woohoo! Kristen is doing well at the new hospital. She is still battling nausea as it seems to come in waves. Hattie and I make it to the hospital at the least once a day, usually more than that. We are adjusting to this new world order in regards to Kristen's care. I say this because things are very different here, in a great way. Patient care, with the patient in mind. Hospital stays with doctors and nurses that know CF and CF patient care. Cf is a very individualized disease, everyone's CF is different. It may seem weird to say that, but we are not used to this kind of care. It is amazing what can happen when you don't spend all your time fighting to get the care and correct treatment for your illness. We came all this way to find a better way. It seems as if we may have found our spot. Kristen does more breathing treatments daily here than ever before. Physical therapy specifically tailored to CF patients. Exercise bike in the room, yoga mat, exercise ball, weights and workouts with PT staff tailored to help Kristen breath and move easier. PFT's are done throughout her stay to see how her treatment is going. I am so glad that we are here, and we are all together as a family. We are so fortunate to be able to be together through all of this. Thanks to everyone for all the support. It is only together that we will get past this hurdle, and we will. Happy Holidays everyone! Talk with you all soon, hug your loved ones and tell them how important they are to you. Love to you all, Eric
1 Comment
|
AuthorKristen & Eric Burdick Archives
March 2016
Categories |